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“This led to the idea of putting together a publication where parents could readily access a wide variety of views and suggestions from autistic adults.”Da Vanport sees parents struggling with fear generated by their child’s diagnosis, based on information from non-autistic people, who often catastrophize disability. Even if she never has children of her own.” – “People often remark on my social skills and wonder how I can be on the spectrum.
“It’s only when parents reach out to the autistic community,” she says, “that they begin to build an accurate understanding of autism by learning from the lived experiences of actually autistic people.”Here are some excerpts from the book. I just laugh and remember the countless hours spent glued to my television mimicking the characters on the screen. Acceptance means that you accept your child’s autistic neurology as valid.” — “When I was in middle school, the bullying I had been subject to for the last six or seven years suddenly took on a sexual tone. I got pulled into niches beneath the stairs or little alcoves behind the lockers where I would be groped or kissed against my will. If you want your daughter to feel like the door is open for her to come to you to talk about sexual issues (and I do hope that is what you want!
In addition, the huge amount of energy it takes to behave in the ‘social butterfly’ mode is often ignored or overlooked. It is no accident that autistic girls are more often labeled with depression or eating disorders than with their real neurodivergent natures. Your autistic child at three is not your autistic child at nine. Do not write the story of your child’s life before they even enter kindergarten. Doing it with a friend or two who truly understands and likes you for who you are make it — if not easier — at least less painful.
When you live from early childhood out of sync with social norms and expectations, it’s easy to feel as if you are alien, wrong, and bad. Stimming, flapping, perseverance, and accommodating sensory preferences are not reasons to apologize.
Even something as trivial as fever can make parents go into a hyperactive mode looking for a solution to provide requisite respite to their baby.